Author Archives: yun

Dangerous bee virus less deadly in at least one US forest, researchers find

UNIVERSITY PARK, Pa. — This year’s cold and flu season is bringing good news for honey bees: Penn State researchers have found that the deadly deformed wing virus (DMV) may have evolved to be less deadly in at least one U.S. forest. The findings could have implications for preventing or treating the virus in managed […]

Knowledge Shortfalls Among Parents of Children with Sickle Cell Disease

Substantial shortfalls in knowledge exist among parents of children with sickle cell disease (SCD) related to pneumococcal infection prophylaxis (PIP), according to recent findings, pointing to a need for greater spread of awareness of PIP in clinics for SCD.1 These findings resulted from a recent cross-sectional study looking at the different viewpoints, perceptions, and awareness […]

Takeda Gets FDA Approval For Blood-Clotting Disorder Treatment

By Ben Glickman Takeda’s treatment for a rare blood clotting disorder received approval from the U.S. Food and Drug Administration. The FDA said Thursday it approved Adzynma, a genetically engineered protein product for enzyme replacement therapy, to treat adults and children with congenital thrombotic thrombocytopenic purpura. The disorder, caused by a genetic mutation, causes blood […]

Questions to Ask Your Doctor About Spinal Muscular Atrophy

Prevalence of SMA: Orphanet Rare Dis. (2017.) “Indirect estimation of the prevalence of spinal muscular atrophy Type I, II, and III in the United States.” https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5704427/ Bone Mass and SMA: Neuromuscular Disorders. (2017.) “Low bone mineral density and fractures are highly prevalent in pediatric patients with spinal muscular atrophy regardless of disease severity.” https://www.nmd-journal.com/article/S0960-8966(16)31002-1/fulltext Nutritional […]

21st annual Bobby Natalini Jr. Blood Drive set for Nov. 22 at St. Andrew Church

EAGLEVILLE >> Since 2003, the Bobby Natalini, Jr. Blood Drive has collected more than 2,100 blood donations and helped save 6,300 lives. And each year friends, former Norristown Area High School classmates and family of Natalini, who died in 2002 from a rare bone disease, come on in honor of the East Norriton native to […]

Give blood and celebrate the 20th anniversary of the movie “Elf”

EAU CLAIRE, Wis. (WEAU) – The American Red Cross is helping spread Holiday cheer to people that help donate blood. To celebrate the 20th anniversary of the movie Elf, anyone that donates blood at the red cross between November 10th and 30th will receive a special pair of elf and red cross socks. To donate, […]

Infected blood scandal: Government launches legal challenge over FOI ruling

By Vanessa Pearce BBC News, West Midlands The government has launched a legal challenge to a ruling over information relating to compensation payments for victims of the infected blood scandal. Campaign group Factor 8 had called for some details of the scheme to be made public, a move backed by the Information Commissioners Office (ICO). […]