Category Archives: Congenital disorders

AIIMS-Delhi got ₹23 crore from Centre in five years for rare diseases: RTI

PTI | | Posted by Lingamgunta Nirmitha Rao Jul 30, 2023 03:08 PM IST <span class="share share-candidate" data-url="https://www.hindustantimes.com/cities/delhi-news/aiimsdelhi-got-rs-23-cr-from-centre-in-five-years-for-rare-diseases-rti-101690709226450.html" data-title="AIIMS-Delhi got ₹23 crore from Centre in five years for rare diseases: RTI” title=”share” data-links> Share Via Copy Link Totally 34 patients were treated for rare diseases such as MPS II, Gaucher, Atypical HUS, DMD, Tyrosinemia type-1, […]

Stem cells combat intractable diseases at Iran’s Royan Institute

With a specialized umbilical cord blood bank, the Royan Institute in Iran has treated over 80 types of blood and other diseases, such as thalassemia, immunodeficiency syndromes, and congenital anemias. A Royan Institute employee passing near the institute’s entrance in Tehran on February 3, 2019. (Mehr News Agency) The Royan Institute in Iran is making […]

Discover the Largest Landfill in Pennsylvania (And What Lives Around It)

Landfills are necessary for the cleanliness and health of communities all across America. Pennsylvania has 37 operational landfills contributing to solid waste disposal, recycling, and more. But do they pose any risks to nearby residents or the environment? Furthermore, these landfills are usually located on the outskirts of towns or cities, so they take up […]

Staphylococcus Aureus Mutations During Treatment for Atopic Dermatitis

This article was originally published on Dermatology Times. This version has been lightly edited. The pathogen Staphylococcus aureus often invades the inflamed skin of people with atopic dermatitis (AD), worsening the disease by increasing skin damage. S aureus is found on healthy skin but appears in higher numbers on diseased skin because it exploits the fragile […]

Sudden cardiac arrest in young athletes is rare and hard to predict

Sudden cardiac arrest in young athletes is rare and hard to predict. Every second counts when it comes to saving lives. Photo: Getty Images Sudden cardiac arrest among young athletes is a low-probability, high-impact event. Roughly one in 50,000 to one in 80,000 young athletes will die each year of sudden cardiac arrest, says Dr. […]

PAH: Changing Approaches to Diagnosis, Treatment, and the Patient Journey

In recent decades, there’s been a sea change in the understanding of pulmonary arterial hypertension (PAH), which in turn has affected the patient journey in this disease. The prognosis of PAH has evolved from impending death with few treatment options to a chronic condition notable for improved survival.1 Improved patient survival has been realized due […]

AJMC® in the Press, July 28, 2023

An opinion piece in The Hill referenced a study published in the June 2023 issue of The American Journal of Managed Care® (AJMC®). The study, “Income Differences Between Locations of 340B Entities and Contract Pharmacies,” found that 340B-covered hospitals and grantees were contracting with pharmacies in more affluent neighborhoods. An article from Medical Xpress referenced […]